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19 Jan |
Some more updates Day to Day Life, Edie, General Health
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Well, it’s 38.3°F this morning, and I doubt I’ll be going out for a ride at my normal time, so I thought I’d take the extra time to do a little rambling.
First off, as most of my regular visitors should have already noted, I’ve finally decided on a new theme. There are still some more improvements I need to make, as time goes on, but for now I am happy with it.
Yesterday, Edie got a letter in the mail, formally denying her transplant. That wasn’t unexpected, and may actually have been welcome, if you remember from my last post. She also had an appointment with her oncologist yesterday, where they discussed how to proceed.
Edie is in at least a partial remission, so they both decided it’s best to stop all treatments for now, and see what transpires over the next several weeks/months and hopefully years. This should give the neuropathy more time to improve, and the heart damage to reverse itself. There is strong evidence for both this will occur.
So here we are in what is called the wait and watch (aka worry) mode. We’re still planning on going to New Zealand the last two weeks in March, but I’m trying to convince Edie we should move the trip up a few weeks. I sure would like to get away from this brutally cold winter, which seems to have no end in sight, for a couple of weeks. After all, it is summer in New Zealand.
Edie’s nueropathy is still presenting some problems for her, so that is my one concern. I would like to see her feeling better before we take the trip, but who knows, the warmer weather in New Zealand may actually help.
I know it will help me!
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16 Jan |
How to deal with disappointment? Day to Day Life, Edie, General Health
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You rationalize it away of course. Everyone does it. Well…., at least I do.
I did it two weeks ago, when I couldn’t keep up with the group on a Thursday ride, chalking it up to the fact I had ridden hard the last two days, and just didn’t have it.
Then this past Saturday, after getting my second flat within about 5 miles, and not being able to do the hammer zone portion of the ride, I rationalized I was tired, and needed to conserve my energy for the Sunday Palos Verdes ride, which is a pretty intense ride.
Now, while there was some truth to those excuses, I thought I was feeling good that Thursday, and I really did want to do the Hammer Zone on Saturday, and besides, it’s never stopped me before from riding hard two or three days in a row.
But then yesterday, Edie got news her scheduled transplant was a no go. It seems she has experienced some heart damage, which I believe was the result of the Doxil (a drug I posted on just recently) she had been taking.
I’m pretty sure Edie wanted the transplant, even though I have always had my doubts about the efficacy of an autologous transplant, but when she received the news she didn’t seem very upset.
She rationalized the disappointment away, stating it was probably best, since all the extra drugs etc. she would have had to take, could have resulted in further kidney damage, possibly putting her back on dialysis, a prospect she did not want to have to endure again. Now while there is some truth to that belief, I’m just not sure she really meant it.
Oh well, such is life. That’s something I would normally say under these circumstances having always believed in fate and a predetermined destiny.
When something doesn’t happen just the way you planned or expected, it’s probably for some good reason, and there’s nothing anyone could have done to change that eventual outcome anywaze.
Remember that old song, Que Sera Sera?
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23 Jan |
It’s on to Super Bowl XL for the Steelers Day to Day Life
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At least that’s one piece of good news. It’s not that something drastic has changed in my condition, but it’s been awhile since I posted so I thought this might be an appropriate time to post at least one piece of good news. No offense Denver fans.
Like I said, not much has really changed for me. I still feel fine, but my performance on the bike is not as good as I would hope. Maybe it has to do with the weather? It’s been very cold here lately, making training more difficult due to the extra clothing I need to keep warm. The cold weather coupled with the accident that kept me off the bike for awhile, I hope is the real reason I seem to be getting into such bad shape. Plus I am getting older. Maybe just the fact that I’m 57+ is another reason I can’t keep up with the 30 year olds.
I ‘ve also started running on the treadmill at home. Running is great exercise, (you can get an equal or greater aerobic work out in a shorter time), but as with everything, there are trade offs. Running is brutal on the body, and it can depress the hemaglobin levels somewhat, which can be another factor attributing to my worn out feeling.
I prefer to think it’s old age! Yeah, that’s the ticket!
Well the weather has finally warmed up today. The temperature this morning was 58°F which is about 20°F warmer then it has been over the weekend. Hopefully the weather will stay nice for awhile, and I can get some good training miles in. In the mean time I’ll stick to the Computrainer at work.
I guess I’ve vented enough for one day. I’ve got a doctor’s appointment on Wednesday, and as usual I’ll have my blood checked. I’m also going to have to pick a new oncologist, since my current one is moving to Corpus Christi [TX] in the next month or two. I’ve pretty much decided on Dr. Chen. I’ve been told he is more in to research, and I think that will be of benefit in the long run.
GO STEELERS!!