Aug 072010
 

Last night I discovered I pissed off a friend with one of my recent posts. I won’t mention which post, but if you frequent this blog, it shouldn’t be too difficult to figure out.

Be it known, that certainly wasn’t my intention. It’s just sometimes I’m compelled to express my feelings of frustration. It’s a big reason I continue with this blog. Let’s face it, I’m a pretty liberal guy, and when confronted with something that goes against my core beliefs, I vent. I could scream and yell (which I do on occasion), but this blog seems to be a more appropriate venue to do that, not only because it’s less confrontational, but I can usually get some support from at least a few people here.

But if it’s any consolation to my friend (who incidentally I don’t hold any animosity against because he doesn’t believe how I do) this morning was not a good one.

It started off by getting up late. So I was already in a rush when I decided to grease my left bicycle pedal (that’s the one I believe is causing the clicking I’ve been experiencing as of late again), and in the process accidentally got some grease on my nice clean riding shorts. This caused an ugly, obtrusive stain, which I only discovered after spending about 5 minutes looking for the little [tiny] screw I lost, which covers the grease hole in the pedal, and to no avail I might add. So after giving up looking for the little screw, I still had to change my shorts, which put me even further behind schedule than I already was for the start of the club ride.

I did manage to catch the group, but not without some extra effort.

Then to top it off, I got dropped by group 1 in the hammer zone. Normally that wouldn’t be such a big deal, but there was only one group today, a third of which were group 2 riders. There were some mitigating factors which I could use as an excuse, but it doesn’t make the feeling any less demoralizing. I should have been able to keep up.

So is that what some might call bad karma?

Jun 122010
 

It seems the longer we go, the worse things get.

The fiasco in the gulf is just one of many example.  We’re so busy politicizing this, and trying to place blame and fault (often where it doesn’t belong), little focus is being placed on the real issue, and that is an ecological disaster that will linger on [for uncountable years], creating unimaginable consequences from which the southeastern coast of the US may never recover, and place an undue burden on the rest of the country.

Another example is the politicization of physician reimbursements for medicare patients by the Republicans. But I’m not going to get into that. It would take up way too much of my time, and result in even greater aggravation.

Then there are the customers [at work] who are becoming more stupid by the day, designing systems that are so complicated and convoluted, and change by the minute, they guarantee errors, and non compliance with requirements, forcing suppliers to change procedures that have worked for the past 30+ years [and still work for 99% of all other customers], all in the name of improving quality. But in the end all it really does is create delays in production, and increased costs, without any improvement in quality.

And on top of all this, Edie is going through 10 days of radiation (3 more to go), and my fatigue [or maybe it's just depression] seems to grow worse by the day, forcing me to face the reality, I may not be able to delay treatment much longer.

There just doesn’t seem to be any reason to get out of bed any more, except maybe for a bike ride, the only thing that seems to allow me to maintain my sanity in this insane world.

All I want to know is, when will all this insanity end?

 Posted by at 7:12 am
Apr 092010
 

I know I said I was done, but I can’t help it. This morning, I received an email from someone I thought knew better. I couldn’t have been more disappointed, especially when I wasn’t feeling good to begin with.

What the email was about isn’t relevant in my opinion. Some of the facts may even have some validity [albeit exaggerated and old], but what is relevant is it seems too many Americans have become so brainwashed by special interests, they are blind to what is really occurring in this country.

The special interests in this country are so adept at diverting the discussion away from the real issues confronting this country, to areas which admittedly attract strong emotions, but have little or no relevance to the problems facing this nation, and are only meant to inflame and polarize an already divided nation.

If I can’t expect the people I consider intelligent seeing through this facade, is there really any hope left that we might emerge a stronger and more unified nation down the road.

I know I shouldn’t say this, as I fleetingly cling to a belief the vast majority of Americans aren’t that stupid, but it’s times like these I almost feel thankful my days on this planet are numbered.

 Posted by at 8:23 am
Feb 252010
 

You know it’s hard being upbeat all the time, especially considering the state of the economy, and the continual partisan bickering by our elected representatives, further evidenced by today’s health care summit [which I turned off after about 10 minutes], who seem to be more concerned with their own well being rather than the well being of the American public.

But that not withstanding, at least the weather has cooperated enough to allow me to get over 500 miles in [on the bike] so far this month, I didn’t get called in for jury duty this week, and my latest blood work continues to show stable disease, if not some slight improvement.

My absolute lymphocyte count still continues on its downward trend [ever so slightly], and it looks like my platelets have finally stabilized, with the latest count coming in at 181 thou/cumm. Hemoglobin has also remained stable at 11.8 g/dl. Not great, but all things considering it could be a lot worse.

So as long as I can continue to avoid the nightly news, and confrontations with ill informed individuals [at least IMO], wishing to engage in political discussion, I may yet be able to keep an upbeat attitude.

Plus a good bottle of wine never hurt either. :)

Jan 232010
 

Well at least how we pay for it is certainly in question.

Here’s another in the continuing saga of health care woes another person (from one of the many health related message boards I belong to) just encountered in dealing with his health insurance company.

After receiving IVIG monthly for 1 1/2 years and no problems with insurance paying, had 1st treatment this month and denied. No change with insurance company or employer. Called insurance and they stated the drug is one of 6 that my company has chosen to bill under seperate drug benefit and not medical.  Called pharmacy plan and their notes on the drug state to call my company HR department as the drug is not covered.

Great news to find out friday after everyone is gone for the weekend…  This is the first battle that I have come upon since diagnosis and preparing myself to justify this treatment after I speak with the HR department and then whomever heads the committee that might have decided to not cover the drug. Any advise from others who might have run across similar denials.  Any organizations that people have found helpful to help fight such a thing?  Trying to stay optimistic that this will be resolved as I can’t find $6000.00 per month to pay for this as most will understand.

That certainly isn’t great news, and I sure hope he gets it resolved, but as health care costs and insurance premiums continue to rise, expect this to become common place as patients are expected to bare more of the burden of paying for their own health care.

This is just a perfect example of how little people understand their insurance policies. Most people don’t know how under insured they are until they get sick, and need to use it. Then it’s too late.

If we don’t change the way we pay for and deliver health care in this country soon, only the richest among us will be able to afford health care.

And in case anyone’s interested why I’m not on my bike this AM, instead of reading message boards and posting to my blog, it’s because the weather is still not cooperating here in southern CA. While the rain has stopped, the roads are still wet, and the temperature dipped below 40°F (my limit for going on a bike ride), so I’m stuck here in the house, again, without much else to do.

Jan 132010
 

It’s raining outside, and as you might expect, I am bored [big time].

So I thought I would give you a little taste of some of the discussions I’ve come across on the various list serves I belong to in relation to my MCL, which I made particular note of, concerning medical care and what ever.

In this first post, a woman is complaining about the poor care she is receiving from her primary care physician (PCP).

I left my PCP’s office in tears today. I’ll give you a little background, when I do go I usually have to wait 1 to 1/2 hr to even see him, then, he’s with me for about 2 minutes. <snip>

Anyway, I’m in constant pain, I mean constant, with the RA, the joint pain from the chemo, the bursitis and degeneration in my hip, the carpal tunnel in both hands, all of which happened after chemo. The Doctor came in and said “what’s going on today” I said “I’m in pain” his reply “again?”. He says “I’ll send someone in with your prescriptions” and started leaving the room, I said “wait” and he replied with “I’ll be right back”. When he came back I asked if he has even read my chart concerning all the pain I’m in, he said yeah but he was more concerned with the “cancer”. He proceeded to leave the room again and I said I wanted to talk to him about some things, again, he said he’d be back. When he finally came back I asked him about a pain management program because I want to work, which is getting harder every day. He said “let’s wait until after your pet scan and we’ll worry about it then” I just felt like he was saying let’s wait to see if worth the trouble or not or let’s see if you’re going to live first, then he left the room, all this happened in about a 2-3 minute span.

<snip>

I have to go to Doctor’s “in network” so my options are kind of limited, but I don’t think I can ever see that Doctor again after today!!!

That’s unfortunate, but doesn’t she understand that as reimbursements continually get cut to health care providers by the government (Medicare/Medicaid), and by health insurance companies [to increase profits], some doctors don’t always have the time to be as concerned, and they just aren’t going to perform to the best of their abilities.

Just think about that for a minute. How would you feel if you were asked to work for less money each year?

And here’s another email from some one who wants his insurance company to pay for a visit to an out of network doctor, when his plan doesn’t give him that option.

I was wondering if anyone has advice for an appeal letter to send to our insurance company to appeal our denied request to go see an out of network physician for a second opinion. If possible please also forward my wife on any suggestions or advice as we will be working together to come up with a letter.

I guess he must think he’s in a country like France or the UK where you can see any doctor you choose. But he’s not. He’s in the good old US of A, where we have enough trouble just getting the benefits we’re entitled to, let alone trying to squeeze the for-profit health insurance industry for benefits we’re not entitled to.  GOOD LUCK! (I might also had some of my comments back to him weren’t well received by a few members of the message board.)

And finally, there’s even some religious undertones which go on here. One lady was upset because her cousin, diagnosed with non hodgkins lymphoma refused treatment, and just wanted to die. A lot of the posts were supportive, but this one post got my ire.

The neighbor down the street, at eighty-something had had successful heart surgery and seemed to be on the mend after months of suffering and several hospitalizations. She was diabetic but then suddenly developed kidney failure. She out and out refused dialysis. Wouldn’t discuss it and her conversation amounted to, I’m ready to die. Period. End of story. Her husband and friends’ pleas were ignored. Then in her final two days’ dying in an extended care facility she regretted her choice (told my wife who works there). Rational decisions aren’t everyone’s choices. Sad to say.

Anyone else think this post is contrived, and designed to advance an agenda?

Oh well, like I said, I was bored.

 Posted by at 7:57 am