<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	>

<channel>
	<title>Living with MCL &#187; Edie</title>
	<atom:link href="http://livingwithmcl.com/category/edie/feed/" rel="self" type="application/rss+xml" />
	<link>http://livingwithmcl.com</link>
	<description>The ramblings of a mantle cell lymphoma survivor</description>
	<lastBuildDate>Thu, 24 May 2012 21:19:28 +0000</lastBuildDate>
	<language>en</language>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
	<generator>http://wordpress.org/?v=3.3.2</generator>
		<item>
		<title>Through the &#8220;Donut Hole&#8221;</title>
		<link>http://livingwithmcl.com/2012/04/30/through-the-donut-hole/</link>
		<comments>http://livingwithmcl.com/2012/04/30/through-the-donut-hole/#comments</comments>
		<pubDate>Mon, 30 Apr 2012 13:15:28 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Health Care]]></category>
		<category><![CDATA[Affordable Care Act]]></category>
		<category><![CDATA[Donut Hole]]></category>
		<category><![CDATA[Medicare Part D]]></category>
		<category><![CDATA[ObamaC]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=7496</guid>
		<description><![CDATA[So Edie&#8217;s free lights are continuing their upward trend, and her doctor has recommended adding Vorinostat (Zolinza) to the mix (4 &#8211; 100 mg tablets per day for two weeks, then off a week). A recently completed clinical trial has shown it to be efficacious when combined with Velcade, and since the Velcade alone hasn&#8217;t been <a href='http://livingwithmcl.com/2012/04/30/through-the-donut-hole/' class='excerpt-more'>[...]</a>]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2012/04/30/through-the-donut-hole/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>It&#8217;s a beautiful day, and&#8230;&#8230;&#8230;</title>
		<link>http://livingwithmcl.com/2012/03/10/its-a-beautiful-day-and/</link>
		<comments>http://livingwithmcl.com/2012/03/10/its-a-beautiful-day-and/#comments</comments>
		<pubDate>Sat, 10 Mar 2012 18:37:19 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Treatments]]></category>
		<category><![CDATA[alternative treatments]]></category>
		<category><![CDATA[Rituxan]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=7215</guid>
		<description><![CDATA[I'm stuck lying around the house with a bad back [again]. (Fortunately there is a golf tournament to occupy me somewhat.) Don't know what I did to deserve it, but I've found that often to be the case. 

So since it's been over a week since I've posted anything, I thought I'd take this opportunity to just 'ramble' about a few things that come to mind.]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2012/03/10/its-a-beautiful-day-and/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>It&#8217;s been awhile</title>
		<link>http://livingwithmcl.com/2012/01/11/its-been-awhile/</link>
		<comments>http://livingwithmcl.com/2012/01/11/its-been-awhile/#comments</comments>
		<pubDate>Wed, 11 Jan 2012 18:07:38 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Multiple Myeloma]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=6975</guid>
		<description><![CDATA[...rather than dwell on my problems any more, I thought I'd take this opportunity to update everyone on Edie's condition, especially since it's been awhile (just about a year) since I last posted anything about Edie.

So let's see! Since my last post, Edie started]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2012/01/11/its-been-awhile/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>It&#8217;s a delicate balancing act</title>
		<link>http://livingwithmcl.com/2011/01/28/its-a-delicate-balancing-act/</link>
		<comments>http://livingwithmcl.com/2011/01/28/its-a-delicate-balancing-act/#comments</comments>
		<pubDate>Fri, 28 Jan 2011 15:00:31 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Velcade/Decadron]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=5543</guid>
		<description><![CDATA[As I posted a couple of days ago, Edie&#8217;s latest treatment protocol (Velcade + Decadron) seems to be working. Maybe even better than previously thought. Not only has Edie&#8217;s kidney function improve significantly, but her Freelight Chains have dropped dramatically, from 2600 a week ago to 62 now. That&#8217;s still not in the normal range <a href='http://livingwithmcl.com/2011/01/28/its-a-delicate-balancing-act/' class='excerpt-more'>[...]</a>]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2011/01/28/its-a-delicate-balancing-act/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>At least the Velcade is working</title>
		<link>http://livingwithmcl.com/2011/01/19/at-least-the-velcade-is-working/</link>
		<comments>http://livingwithmcl.com/2011/01/19/at-least-the-velcade-is-working/#comments</comments>
		<pubDate>Wed, 19 Jan 2011 23:52:33 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Multiple Myeloma]]></category>
		<category><![CDATA[Velcade/Decadron]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=5501</guid>
		<description><![CDATA[It seems the second go around of Velcade plus Decadron is doing its job on Edie&#8217;s myeloma. After just two treatments, her blood counts are improving, as is her kidney function. So all would seem well again. Unfortunately that is never the case. As I&#8217;ve learned many times in the past, there always has to <a href='http://livingwithmcl.com/2011/01/19/at-least-the-velcade-is-working/' class='excerpt-more'>[...]</a>]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2011/01/19/at-least-the-velcade-is-working/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>A great dilemma</title>
		<link>http://livingwithmcl.com/2011/01/14/a-great-dilemma/</link>
		<comments>http://livingwithmcl.com/2011/01/14/a-great-dilemma/#comments</comments>
		<pubDate>Fri, 14 Jan 2011 15:32:56 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[My MCL]]></category>
		<category><![CDATA[Work]]></category>
		<category><![CDATA[Disability]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=5490</guid>
		<description><![CDATA[For the past couple of months I seem to be getting more and more fatigued (I know my cycling abilities have sure been lacking), and my spleen has been becoming more bothersome, especially during my long commute to work. It may just be this time of year (which I have never liked), along with the <a href='http://livingwithmcl.com/2011/01/14/a-great-dilemma/' class='excerpt-more'>[...]</a>]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2011/01/14/a-great-dilemma/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>Another miserable day, in more ways than one</title>
		<link>http://livingwithmcl.com/2010/12/28/another-miserable-day-in-more-ways-than-one/</link>
		<comments>http://livingwithmcl.com/2010/12/28/another-miserable-day-in-more-ways-than-one/#comments</comments>
		<pubDate>Wed, 29 Dec 2010 03:18:47 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Melphalan]]></category>
		<category><![CDATA[Multiple Myeloma]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=5444</guid>
		<description><![CDATA[It&#8217;s not bad enough Edie was diagnosed with multiple myeloma 5 years after my diagnosis with lymphoma, has already undergone radiation treatment [twice], several different chemotherapy iterations, and a stem cell transplant (while I have had no treatments or major symptoms), today she&#8217;s going for here 2nd blood transfusion in just 3 weeks. She had <a href='http://livingwithmcl.com/2010/12/28/another-miserable-day-in-more-ways-than-one/' class='excerpt-more'>[...]</a>]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2010/12/28/another-miserable-day-in-more-ways-than-one/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Carpe diem!</title>
		<link>http://livingwithmcl.com/2010/11/13/carpe-diem/</link>
		<comments>http://livingwithmcl.com/2010/11/13/carpe-diem/#comments</comments>
		<pubDate>Sat, 13 Nov 2010 22:34:31 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Life]]></category>
		<category><![CDATA[carpe diem]]></category>
		<category><![CDATA[family]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=5266</guid>
		<description><![CDATA[The month of November is not starting out so good. And I&#8217;m not just referring to my normal complaints, i.e. shorter days, colder than expected temperatures (44°F this morning), work, and a myriad of other issues I won&#8217;t get into now. It even goes beyond the fact Edie&#8217;s lastest chemo regime (Bendamustine) isn&#8217;t working, and <a href='http://livingwithmcl.com/2010/11/13/carpe-diem/' class='excerpt-more'>[...]</a>]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2010/11/13/carpe-diem/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>Summer has finally arrived</title>
		<link>http://livingwithmcl.com/2010/09/27/summer-has-finally-arrived/</link>
		<comments>http://livingwithmcl.com/2010/09/27/summer-has-finally-arrived/#comments</comments>
		<pubDate>Mon, 27 Sep 2010 13:10:17 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Health Care]]></category>
		<category><![CDATA[My MCL]]></category>
		<category><![CDATA[Politics]]></category>
		<category><![CDATA[Donut Hole]]></category>
		<category><![CDATA[Financial Industry]]></category>
		<category><![CDATA[Kaiser Permanente]]></category>
		<category><![CDATA[Medicare Part D]]></category>
		<category><![CDATA[The Weather]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=5024</guid>
		<description><![CDATA[When I first sat down this morning, I had every intention of writing a political rant.

I was pissed off because..............

But then I thought]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2010/09/27/summer-has-finally-arrived/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>I&#8217;ve been scammed</title>
		<link>http://livingwithmcl.com/2010/09/10/ive-been-scammed/</link>
		<comments>http://livingwithmcl.com/2010/09/10/ive-been-scammed/#comments</comments>
		<pubDate>Fri, 10 Sep 2010 13:31:51 +0000</pubDate>
		<dc:creator>Marc</dc:creator>
				<category><![CDATA[Edie]]></category>
		<category><![CDATA[Life]]></category>
		<category><![CDATA[Off Topic]]></category>
		<category><![CDATA[insurance]]></category>
		<category><![CDATA[Orkin]]></category>
		<category><![CDATA[Scams]]></category>
		<category><![CDATA[termites]]></category>

		<guid isPermaLink="false">http://livingwithmcl.com/?p=4943</guid>
		<description><![CDATA[And here I thought I was depressed a couple of days ago. :(]]></description>
		<wfw:commentRss>http://livingwithmcl.com/2010/09/10/ive-been-scammed/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
	</channel>
</rss>

