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	<title>Comments on: MCL Update</title>
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	<link>http://livingwithmcl.com/2010/04/24/mcl-update-2/</link>
	<description>The ramblings of a mantle cell lymphoma survivor</description>
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		<title>By: Marc</title>
		<link>http://livingwithmcl.com/2010/04/24/mcl-update-2/comment-page-1/#comment-5347</link>
		<dc:creator>Marc</dc:creator>
		<pubDate>Sun, 25 Apr 2010 18:58:52 +0000</pubDate>
		<guid isPermaLink="false">http://livingwithmcl.com/?p=4093#comment-5347</guid>
		<description>Well you didn&#039;t do a very good job of not scaring me, but I will do some additional research.

What you say is likely correct about iron deficiency, but how about when you factor in the fact I have a blood [technically lymphoid] cancer, and my bone marrow isn&#039;t functioning normally. It [the bone marrow] just may need a little extra help in the form of an iron and/or folic acid supplement. 

And yes, people with one type of cancer are prone to others [secondary cancers], but that is usually the result of having had chemotherapy, which is the norm, almost immediately, after being diagnosed.

I am scheduled for a BMB on the 12th of May, so I&#039;ll ask you my doctor about scheduling a colonoscopy. It&#039;s been almost 8 years since my last one, so I am probably due.

Thanks,</description>
		<content:encoded><![CDATA[<p>Well you didn&#8217;t do a very good job of not scaring me, but I will do some additional research.</p>
<p>What you say is likely correct about iron deficiency, but how about when you factor in the fact I have a blood [technically lymphoid] cancer, and my bone marrow isn&#8217;t functioning normally. It [the bone marrow] just may need a little extra help in the form of an iron and/or folic acid supplement. </p>
<p>And yes, people with one type of cancer are prone to others [secondary cancers], but that is usually the result of having had chemotherapy, which is the norm, almost immediately, after being diagnosed.</p>
<p>I am scheduled for a BMB on the 12th of May, so I&#8217;ll ask you my doctor about scheduling a colonoscopy. It&#8217;s been almost 8 years since my last one, so I am probably due.</p>
<p>Thanks,</p>
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		<title>By: Alan Posner</title>
		<link>http://livingwithmcl.com/2010/04/24/mcl-update-2/comment-page-1/#comment-5345</link>
		<dc:creator>Alan Posner</dc:creator>
		<pubDate>Sun, 25 Apr 2010 14:08:09 +0000</pubDate>
		<guid isPermaLink="false">http://livingwithmcl.com/?p=4093#comment-5345</guid>
		<description>Marc,

The number one cause of iron deficiency anemia in men (women menstruate so it&#039;s not that unusual) is occult GI bleeding, not inadequate intake.

If your anemia is indeed from iron deficiency (you should have a serum ferritin and/or Fe/Tibc to confirm this) you need a colonoscopy and EGD.

I&#039;m surprised your oncologist didn&#039;t suggest this.

People with one type of cancer tend to be prone to others.

Not trying to scare you, but you should bring this up with your oncologist.

Alan</description>
		<content:encoded><![CDATA[<p>Marc,</p>
<p>The number one cause of iron deficiency anemia in men (women menstruate so it&#8217;s not that unusual) is occult GI bleeding, not inadequate intake.</p>
<p>If your anemia is indeed from iron deficiency (you should have a serum ferritin and/or Fe/Tibc to confirm this) you need a colonoscopy and EGD.</p>
<p>I&#8217;m surprised your oncologist didn&#8217;t suggest this.</p>
<p>People with one type of cancer tend to be prone to others.</p>
<p>Not trying to scare you, but you should bring this up with your oncologist.</p>
<p>Alan</p>
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		<title>By: Marc</title>
		<link>http://livingwithmcl.com/2010/04/24/mcl-update-2/comment-page-1/#comment-5344</link>
		<dc:creator>Marc</dc:creator>
		<pubDate>Sat, 24 Apr 2010 17:46:58 +0000</pubDate>
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		<description>I should have said, that not jumping into treatment has less to do with my skepticism of the US health care system than it does with the fact there have been very few advancements in cancer treatments over the past several decades, and the treatments that are available can&#039;t really be considered medicine.</description>
		<content:encoded><![CDATA[<p>I should have said, that not jumping into treatment has less to do with my skepticism of the US health care system than it does with the fact there have been very few advancements in cancer treatments over the past several decades, and the treatments that are available can&#8217;t really be considered medicine.</p>
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	<item>
		<title>By: Marc</title>
		<link>http://livingwithmcl.com/2010/04/24/mcl-update-2/comment-page-1/#comment-5343</link>
		<dc:creator>Marc</dc:creator>
		<pubDate>Sat, 24 Apr 2010 14:15:56 +0000</pubDate>
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		<description>Thanks Mike, and yeah I know all to well, everyone is younger than me, so that really isn&#039;t a complaint. It was more just an observation, and usually they are more receptive to learning and working with the patient. 

And my reason for not jumping head first into treatment, has nothing to do with my skepticism with the US health care system. Treatment options are basically the same any where in the world, and there hasn&#039;t been much advancement in cancer treatment over the last several decades. And in the US you are more likely to have access to what ever advancements there are.

My reasons for wanting to delay conventional treatment as long as possible, has more to do with the statement &quot;sometimes the cure can be worse than the disease.&quot; I&#039;ve never really considered the infusion of deadly chemicals into the body as being medicine.</description>
		<content:encoded><![CDATA[<p>Thanks Mike, and yeah I know all to well, everyone is younger than me, so that really isn&#8217;t a complaint. It was more just an observation, and usually they are more receptive to learning and working with the patient. </p>
<p>And my reason for not jumping head first into treatment, has nothing to do with my skepticism with the US health care system. Treatment options are basically the same any where in the world, and there hasn&#8217;t been much advancement in cancer treatment over the last several decades. And in the US you are more likely to have access to what ever advancements there are.</p>
<p>My reasons for wanting to delay conventional treatment as long as possible, has more to do with the statement &#8220;sometimes the cure can be worse than the disease.&#8221; I&#8217;ve never really considered the infusion of deadly chemicals into the body as being medicine.</p>
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		<title>By: Altaloman</title>
		<link>http://livingwithmcl.com/2010/04/24/mcl-update-2/comment-page-1/#comment-5342</link>
		<dc:creator>Altaloman</dc:creator>
		<pubDate>Sat, 24 Apr 2010 13:54:23 +0000</pubDate>
		<guid isPermaLink="false">http://livingwithmcl.com/?p=4093#comment-5342</guid>
		<description>Thanks for the update and the details on your diagnosis.  The hint that you may not have MCL could be good news?

One of the realities for all of us in the post-60 age range is that our encounters with most care givers are with the younger generation.  That&#039;s not a bad thing because they are most likely to be read and informed about the latest in medicine for their specialty.  And your hesitation to jump head-first into any treatment plan is understandable in light of a certain skepticism about the medical establishment.  Yet, when you see improvements in your health and well-being (including longevity with the diagnosis), you must have confidence in those with whom you have placed your trust.  Keep up the fight!</description>
		<content:encoded><![CDATA[<p>Thanks for the update and the details on your diagnosis.  The hint that you may not have MCL could be good news?</p>
<p>One of the realities for all of us in the post-60 age range is that our encounters with most care givers are with the younger generation.  That&#8217;s not a bad thing because they are most likely to be read and informed about the latest in medicine for their specialty.  And your hesitation to jump head-first into any treatment plan is understandable in light of a certain skepticism about the medical establishment.  Yet, when you see improvements in your health and well-being (including longevity with the diagnosis), you must have confidence in those with whom you have placed your trust.  Keep up the fight!</p>
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