Oct 292007
 

Just read this post on the Mulitple Myeloma (MM) message board I subscribe to, which I thought of value, as it points out how little most Americans know of how the US health care system works.

I was in the hospital a few months ago and was asked if I wanted a flu and a pnuemonia shot. I thought it would be a good idea, since I don’t want to bring any nasty germs into the house and subject my MM hubby to them. Before I was released, I was told my insurance (Blue Cross) wouldn’t pay for the vaccines because I was too young. I am 48.

What surprised me the most about this post, was not the fact her insurance company denied the claim, but that she seemed surprised they did.

Doesn’t she understand how the US health care system works?

Unfortunately she, like many others, don’t understand that health care in the US is controlled by a “for profit” health insurance industry, whose priorities lie not with their policy holders in insuring the best health care possible, but rather with their share holders in the form of ever increasing profits.

They accomplish this in a number of ways, but high on the list is to deny and/or delay care whenever the opportunity arises.

And people really prefer this system of “for profit health insurers” paying the bills, over the government, who doesn’t have a vested interest in denying or delaying claims, paying the bills.

It boggles the mind, how unaware some people are of how the US health care system really works.

Of course once you get sick, you learn very quickly!

 Posted by at 5:57 pm
Oct 242007
 

I sure hope I’m not getting too far ahead of myself here, by extending a big thank you to Millenium Pharmaceuticals (MLNM), the makers of Velcade.

So far, Velcade is doing a great job of treating Edie’s myeloma. All of Edie’s counts are essentially back to normal, with the exception of some minor discrepancies, which I’m not going to fret over, and she has been off dialysis, since last Monday, October 15th.

Edie has been experiencing some peripheral neuropathy (PN) which has been causing her difficulty in opening containers, and even writing, so the doctor has decided it is best to cut back on the dosage from 1.3 mg/m2 to 1.0 mg/m2.

The recommendation by Millenium Pharmaceuticals, when the PN is that bad, is to eliminate the Velcade altogether, until the PN subsides, but we really didn’t want to do that, since the Velcade seems to be doing such a good job, and her kidney function has not returned completely to normal (only enough to get off the dialysis).

So we mutually agreed to continue at the lower dosage, leaving the option opened to dropping the dosage even further to .7 mg/m2, or stopping it altogether should the PN not improve or get worse.

In the mean time, we’re going to schedule another visit with the transplant specialist to discuss whether she can now be considered a candidate for a transplant.

 Posted by at 6:51 am
Oct 192007
 

Well I think I’ve finally got the new bike dialed in.

Yeah, I know it’s only been just over 6 months since I got my last new bike, but hey, I wanted another one.

I just love the curved top tube, on this bike, and had to have it. It also makes the bike look fast, even when it’s just sitting there. And when you’re as old as I am, you at least have to look good.

And if you notice in the background, even Morris had to stop and admire it.

I was going to sell the Torelli, but after riding the Specialized, I’m not so sure I want to. They are two very different riding bikes.

The Torelli is a much stiffer and a better climbing bike, while the specialized is soooo much smoother. It’s like the difference between driving a Porsche or a Cadillac. I’m just not sure which one I prefer better. They both have their pros and cons.

And after struggling on todays climb up Turnbull Canyon, and beyond, on the “Cadillac”, I’m pretty sure I’m going to keep both!

And just as a side note, while I did struggle on todays ride, it was still worth it.

It was a beautifully clear day, and when I got to the top of Turnbull Canyon, I realized just why I love LA so much, and managed to get this shot. While my cell phone camera doesn’t do the view justice, trust me when I say it was spectacular.

You don’t get a view like this very often, so it’s always a treat when you do. You can see LA, about 35 miles away, just above the mountains, and all the way to the Valley, another 20+ miles beyond.

 Posted by at 9:20 pm
Oct 132007
 

Well, here it is Saturday morning, and it’s raining, so you all know what that means. No bike ride and another post.

The last couple of days have not been so good. It seems the cumulative effect of Edie’s treatment regimen is taking its toll.

Fridays are typically very draining for Edie, consisting of dialysis in the morning, then chemo in the afternoon, but yesterday seemed especially draining. After getting home around 4:30 PM, all Edie wanted for dinner was a chocolate milkshake from McDonalds, and then she was off to bed.

I should say she tried to get some sleep, as the peripheral neuropathy, and overall body aching made that difficult to accomplish. Fortunately she has managed to get some sleep, and is currently asleep as I write this post.

Hopefully all this sleep will rejuvenate her enough (like last Saturday, when she felt well enough to go out for dinner) to go to a friends 60th birthday party tonight.

I used to think the AS9100 audits, I go through at work every year, were the most stressful thing I would ever have to endure in my life, and while they are stressful, they pale in comparison to watching the misery Edie is going through right now.

Watching someone you love go through such misery, and feeling helpless do anything about it, except for holding her hand, an occasional hug, or cuddling in bed, is by far the most stressful thing anyone will ever have to endure in their entire lifetime.

BIG SIGH :cry:

 Posted by at 4:03 am
Oct 102007
 

One of my passions, at least since my diagnosis, has been with health care reform.

Fortunately, the majority of the population and most candidates recognize this is an important issue, maybe even ahead of the Iraq war, and it is gaining major prominence in California, with Governor Schwarzenegger’s revised proposal for health care reform.

I applaud the governor for his effort in bring this issue to the forefront, but his new proposal has some issues, the two biggest of which are the mandate that everyone purchase health insurance, and secondly continuing to place the burden for health care on the backs of employers.

I don’t think either of those two proposals provide any meaningful reform, but they do provide the fodder, for those with a vested interest in the status quo, to successfully fight the proposal.

In that regard, I have written the following letter to Governor Schwarzenegger, outlining my suggestions for improving his proposal, which I believe can gain greater universal acceptance.

If we all band together and voice are concerns and desires, we can achieve real and meaningful reform.

There is no doubt that health care reform is a necessity for the country as well as for California, and your proposal is a step in the right direction, but falls short of providing real health care reform.

First off, requiring everyone to purchase health insurance is a non starter, as well as being unenforceable. We can’t even enforce the law requiring automobile owners and drivers to purchase auto insurance, how do you expect to enforce the requirement that everyone purchase health insurance?

If you’re going to remove the mandate that health care providers treat those without insurance, or the ability to pay, then that might work, but unfortunately that is a federal mandate, so I doubt that is feasible.

Secondly, requiring employers to provide health insurance or pay a tax, is also a non starter. That is exactly the policy we need to be getting away from, and the reason CA businesses and businesses throughout the US are non competitive in the global economy.

We have to get the burden of health care off employers altogether.

The best way to solve both those issues, and ensure that everyone contributes to the maintenance of our health care infrastructure, is to make everyone pay their fair share through a tax on consumption. That way, those that have the most money, and can afford the most, will pay the most.

This can be done in a number of ways, e.g.

1) A small percentage increase in the sales tax.
2) A increase in the gasoline tax. Not only will this provide funds for health care, but will help the environment as well, by encouraging everyone to buy more efficient automobiles.

Plus I am sure there are a number of other effective means of equitably raising taxes to fund a program everyone uses.

And just think what this will do for the business environment in California, if CA businesses no longer have to foot the bill for health insurance. Businesses will be flocking to California to produce their products, which will increase business tax revenues, providing additional funds to provide health care to everyone.

This revenue can then be used to fund the minimum level of care everyone needs, just as Medicare does for the elderly.

This will have the added benefit of relieving the burden from emergency rooms to provide free care (patients will now be able to seek care in doctors office since they will have insurance), and still leave plenty of opportunity for the health insurance industry to provide supplemental insurance to cover other expenses.

At the very least it will permit funding that unfunded mandate.

 Posted by at 12:43 pm
Oct 042007
 

Today, I found myself reading excerpts from an interview between Lance Armstrong and Darren Rovell, and then listening to that same interview, to be sure my ears weren’t deceiving me.

It looks like Nike is going to launch a new line of Livestrong Apparel, and donate 100% of the proceeds to fund cancer research.

That is just unheard of in the corporate world. I can’t imagine another company doing that. [Even a health insurance company.]

The only comment that seems appropriate now is, I know what brand of running shoes, running shorts, or any other piece of sports apparel, I’ll be buying from now on.

 Posted by at 1:18 pm