Comments on: Why I do This? http://livingwithmcl.com/2006/02/26/why-i-do-this/ The ramblings of a mantle cell lymphoma survivor Mon, 06 Feb 2012 12:33:30 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Marc http://livingwithmcl.com/2006/02/26/why-i-do-this/comment-page-1/#comment-21 Marc Mon, 06 Mar 2006 00:29:04 +0000 http://livingwithmcl.com/index.php/2006/02/26/why-i-do-this/#comment-21 Sorry Marianne, for taking so long to post your comment. Since I do get spam comments, I have options set to moderate comments. The problem was I forgot to click the send me an email, when a comment is waiting for moderation. I have fixed the problem for future posters, so it won't take two days to see a comment posted. Oh, and thanks for the feedback. I do appreciate it, especially since I spent the last two days writing this weeks post. Sorry Marianne, for taking so long to post your comment. Since I do get spam comments, I have options set to moderate comments. The problem was I forgot to click the send me an email, when a comment is waiting for moderation. I have fixed the problem for future posters, so it won’t take two days to see a comment posted.

Oh, and thanks for the feedback. I do appreciate it, especially since I spent the last two days writing this weeks post.

]]> By: Marianne McGhan http://livingwithmcl.com/2006/02/26/why-i-do-this/comment-page-1/#comment-19 Marianne McGhan Sat, 04 Mar 2006 01:06:01 +0000 http://livingwithmcl.com/index.php/2006/02/26/why-i-do-this/#comment-19 Marc, I agree with John's comments. I originally started my blog to let my friends and family know how I was doing while I was undergoing a clinical trial in San Diego. But what happened was it turned out to be quite cathartic. By putting down my thoughts and often frustrations in writing, my mind was freed of these thoughts. I also believe that even though you may not realize it you are indeed helping others. Just like all the digests and other blogs, it does help to know that others in similar situations have the same thoughts and feelings… it is reassuring to know you are not alone. Even though we have the support of family and friends, only those in similar situations understand truly what it is like to live with these diseases. In the same sense, I believe we do want people to know what we are going thru but not because we want them to feel sorry for us but again because we want to clear our brain of those thoughts. So you are not selfish or arrogant if you choose all of those reasons... there is some truth in all of them. BTW I was amazed by how many CLLers were helped by my information about my treatment. Don’t sell yourself short…. You will be too. Marianne Marc,

I agree with John’s comments. I originally started my blog to let my friends and family know how I was doing while I was undergoing a clinical trial in San Diego. But what happened was it turned out to be quite cathartic. By putting down my thoughts and often frustrations in writing, my mind was freed of these thoughts. I also believe that even though you may not realize it you are indeed helping others. Just like all the digests and other blogs, it does help to know that others in similar situations have the same thoughts and feelings… it is reassuring to know you are not alone. Even though we have the support of family and friends, only those in similar situations understand truly what it is like to live with these diseases. In the same sense, I believe we do want people to know what we are going thru but not because we want them to feel sorry for us but again because we want to clear our brain of those thoughts. So you are not selfish or arrogant if you choose all of those reasons… there is some truth in all of them.

BTW I was amazed by how many CLLers were helped by my information about my treatment. Don’t sell yourself short…. You will be too.

Marianne

]]> By: Marc http://livingwithmcl.com/2006/02/26/why-i-do-this/comment-page-1/#comment-18 Marc Mon, 27 Feb 2006 14:51:42 +0000 http://livingwithmcl.com/index.php/2006/02/26/why-i-do-this/#comment-18 Thanks John, now if I could only be as big an inspiration to myself Thanks John, now if I could only be as big an inspiration to myself

]]> By: John Wagner http://livingwithmcl.com/2006/02/26/why-i-do-this/comment-page-1/#comment-17 John Wagner Sun, 26 Feb 2006 20:37:17 +0000 http://livingwithmcl.com/index.php/2006/02/26/why-i-do-this/#comment-17 Marc, I think we do this for all the reasons you mentioned, other than getting people to feel sorry for us. I don't think that is it at all. In fact, it bothers me when I can tell people are feeling sorry for me. There are many people that may deserve that, but I certainly am not one of them. I read your blog regularly, along with several others. I think it is always good to see how others are handling things when they are in similar situations. I have received encouragement when I am down and perhaps, hopefully, have been able to be an encourager to others. I have commented before that my writing is almost a private therapy for me. It is useful to make my random thoughts more concrete and that way I can evaluate better where I am currently and where I want to be, phyically, emotionally, and spirtitually. I really like to see how other people are coping and getting on with their normal daily lives. You have served as encouragement for me, and for that I am grateful. Marc,

I think we do this for all the reasons you mentioned, other than getting people to feel sorry for us. I don’t think that is it at all. In fact, it bothers me when I can tell people are feeling sorry for me. There are many people that may deserve that, but I certainly am not one of them. I read your blog regularly, along with several others. I think it is always good to see how others are handling things when they are in similar situations. I have received encouragement when I am down and perhaps, hopefully, have been able to be an encourager to others. I have commented before that my writing is almost a private therapy for me. It is useful to make my random thoughts more concrete and that way I can evaluate better where I am currently and where I want to be, phyically, emotionally, and spirtitually. I really like to see how other people are coping and getting on with their normal daily lives. You have served as encouragement for me, and for that I am grateful.

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