Aug 212014
 

shiva-candleIn Jewish tradition, the Shiva candle represents a person’s soul, since each person brings light into the world. And just as one can take from a flame to light more candles without diminishing the original flame, so too a person can give of him/herself, touching many lives, without ever being diminished.

It’s only supposed to burn for 7 days, but in Edie’s case it burned for nearly 8 and half days.

Now whether the candle burning a day and a half longer than expected is significant, is doubtful. I do know if anyone had asked me what I would have thought about such a thing a month ago, I would have simply chocked it up to poor quality control.

But now that this involves me, I can’t help but think otherwise. For those who knew Edie, you know she wasn’t Jewish, but she was the embodiment of what the Shiva Candle represents,  and it’s hard not to tack on some significance to that event.

I sure would like to think that anyways.

Aug 162014
 

EdieIt’s been 4 days since Edie died, Doris, Edie’s sister, is on her way home to Ohio, and the reality of this past week is starting to take hold.

I’m alone! :(

I haven’t been truly alone, since the 3 months between my discharge from the army and meeting Edie in 1974, and I’m not sure I’m going to be able to handle this.

Edie was always my rock. She never needed or asked for anything special. She was always upbeat, had a smile on her face, and she was always there when I needed her.

What Edie did hate was being a burden on anyone, something I’m sure contributed to her refusal to go to the ER until it was too late.

She just deserved so much better, and Chloe and I will miss her tremendously.

 Posted by at 7:11 am

The worst day of my life

 Edie  Comments Off
Jul 162014
 

Followed by the worst night of my life. Things did not go as planned yesterday.

I didn’t even get the chance to worry about getting Edie up the 4 steps into the house after having her blood coagulation levels checked yesterday. On the way to the car, Edie stumbled on the first step, fell backwards, and hit her head on the ground. She didn’t hit hard, but…………….

I read in the Coumadin manual, you have to be concerned when you hit your head, due to possible bleeding. So after she managed to maneuver herself to the edge of the porch and stand, I got her into the car, and just took her straight to the ER for evaluation.

Long story short, the CT scan was negative, and 6.5 hours later Edie was in a skilled nursing facility. She is just too weak for me to take care of.

sighWords can’t explain how devastated I am. I barely got an hours sleep last night dreaming of nightmare scenarios, and she doesn’t have her phone, so I can’t call her, and visiting hours don’t start until 11 AM.

I know if it weren’t for the damn Coumadin, and having to get her blood checked every 2 or 3 days, I really think she could have recuperated at home, but navigating those 4 steps, so soon after getting out of the hospital, was just too much.

And even worse the nursing home close to the house was full, and the only one available is 18 miles from the house.

So as decisions go, this one has turned out to be a VERY bad one.

Jul 152014
 

woeismePast experiences have taught me my first instincts are usually correct, but like everything else in life that isn’t a guarantee, and after this first night and morning, I’m starting to have some doubts.

Edie was well enough to be released from the hospital. Her oxygen saturation levels are stable, and while they do drop some with exertion, she recovers relatively quickly once at rest.

The problem is she fatigues easily, and compound that with the severe neuropathy in her legs, it’s a struggle just getting up from the seated position.

Today should be the test.  She scheduled to have her blood clotting levels checked at the infustion. I’m pretty sure I can get her there without a problem, but getting her up the 4 step, and back into the house maybe a challenge.

Stay tuned. I may be asking some of you for help! :)

Jul 142014
 

It happened so quick yesterday, it was hard to comprehend.

The doctor comes into visit, examines her, steps out for a minute, and on her return says Edie’s ready to leave. I think it had more to do with the fact the copay requirement was only for 7 days, and after that there’s no cost to the patient. Medicare must treat long stays differently.

Anyways, the first plan was to send her to a Rehab center, AKA skilled nursing facility, nursing/convalescent home, but Edie didn’t like that idea (nor did I). So since she was off the oxygen, but still in need of rehab, we managed Chloeto convince (we complained a lot) the powers to be that rehab through a home health care agency (a Medicare option) was acceptable.

So now we wait. Edie needs to be evaluated by the physical therapist one more time today, and then she will be transferred home this afternoon.

Finally, there’s light at the end of the tunnel. It won’t necessarily be easy, she’s still weak, but I think I can deal with it. And regardless, it’s much better than leaving in a convalescent home.

And Chloe will be a lot happier as well.

Jul 132014
 

That’s what Kaiser calls the unit Edie had been staying in for the past week, but since she’s been making such good progress, yesterday they’ve moved her to a Telemetry Unit. Last night they took her off the IV Heparin (it’s Coumadin alone now), and she was even able to sit upright, in a chair, last night to eat dinner.

I only wish I could say I was doing as well.

AnniversaryYeah, I know any discomfort I may be experiencing pales in comparison to what Edie has endured this past week, or even these past several months, but that doesn’t minimize my situation.

Trying to maintain a semblance of normal life, while driving back and forth to the hospital to visit Edie, picking up her best friend, who flew in from Ohio, at LAX on Friday (and taking her back this morning), all while continuing to worry about Edie, is starting to take it’s toll.

I just can’t seem to relax. Sure I can sit back, lie in the recliner and watch TV, but my mind doesn’t follow suit. Riding my bike and bowling helps, but those are fleeting moments, and once done, my mind starts wondering again.

My only hope now is that this whole ordeal ends soon.